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Viral Diseases C02




ECPP, European Coalition of Positive People


is a London based international HIV/AIDS and Hepatitis C patient organisation working in Europe, Ukraine, Russia, Malawi, Mozambique and Uganda, promoting patient involvement in the development of public policy, delivery and monitoring of services. >>more

ELPA, European Liver Patients Association


emerged from a desire amongst European liver patient groups to share their experiences of the often very different approaches adopted in different countries. >>more

The EATG- European Aids Treatment Group


is a patient base-organisation founded in 1991 as a co-operative structure of people from different nationalities. It is a growing group of treatment activists from 31 European countries. >>more

Cancer C04




ECPC, European Cancer Patient Coalition


was formerly a virtual network of cancer patient organisations. In November 2004, the European Cancer Patient Coalition has been established as 'the voice of European cancer patients', to represent the views of cancer patients in the European healthcare debate and to provide a forum for European Cancer Patients to exchange information and share best practice experiences. >>more

ECL, Association of European Cancer Leagues


Objectives: - to improve communication, promote, enhance and co-ordinate collaboration between European Leagues/societies (round-table discussions and workshops; cancer leagues and societies have an opportunity to network at the annual general assembly and conference) - to foster fruitful activities between European Cancer Leagues and organisations, in order to... >>more

Europa Donna- The European Breast Cancer Coalition


Founded in 1994, at the initiative of italian Pr. Umberto Veronesi, who presented the concept during the European Society of Mastology (EUSOMA) Congress in 1993. Europa Donna was created as a breast cancer advocacy organisation for Europe, on the model of the US organisation. EUROPA DONNA's mode of action is advocacy and lobbying, at both European and national levels. >>more

Europa Uomo - The European Prostate Cancer Coalition


started in Rome in 2002, and was legally established in Milan in June 2004. Europa Uomo is the European advocacy movement for the fight against prostate cancer. Europa Uomo's objective is to increase awareness on prostate cancer in Europe. >>more

NF- Europe, European Federation For neurofibromatosis Associations


is an umbrella organization of national NF patient organizations in Europe. Objectives: 1. Mutual goals of the member associations of NF Europe - Provide clear and correct information. - Offer support to affected families. Develop activities to increase quality of life for families affected. - Organize public awareness campaigns all over Europe. - Provide help and support for new groups... >>more

Musculoskeletal Diseases C05




EULAR, European League Against Rheumatism


was founded in 1947 on the occasion of the 1st European Congress of Rheumatology held in Copenhagen by eleven national leagues. The European League Against Rheumatism (EULAR) is the organization which represents the patient, health professional and scientific societies of rheumatology of all the European nations. >>more

EAMDA, European Alliance of Muscular Disorders Associations


was held in England in 1971. Objectives: - To look after the interests of people with a neuromuscular disease at a European level. - To stimulate and support neuromuscular research by facilitating international cooperation between research groups. >>more

European Neuromuscular Centre (ENMC)


founded in 1989, is hold by 9 European national patient organisations. ENMC is a partner in the development of collaborative activities, ensures financial support for ensuing Workshops, offers organizational support through its secretariat in Baarn, The Netherlands, and acts as a clearing house for relevant research-related data. >>more


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